Epilepsy Organisations
Joint Epilepsy Council
The Joint Epilepsy Council of the UK and Ireland (JEC) is an umbrella body that exists to enable its member organisations to work together for the benefit of people with epilepsy.
Contact: Ms Sharon Harvey, JEC General Secretary, PO Box 186, Leeds, LS20 8WY
Tel: 01943 871 852
Fax: 01943 873 592
Email:
sharon.jec@btconnect.com
Website:
www.jecuk.org
Epilepsy Bereaved
Supports bereaved relatives; provides information on SUDEP and other epilepsy deaths; promotes research into the investigation and prevention of epilepsy deaths.
Contact: PO Box 112, Wantage DO, Oxford, OX12 8XT
Tel: 01235 772850
Fax: 01235 772850
Email:
epilepsybereaved@dial.pipex.com
Website:
www.dspace.dial.pipex.com/epilepsybereaved
Support line: 01235 772852
Epilepsy Action
Provides free and confidential email (
helpline@epilepsy.org.uk
) and Freephone (0808 800 5050) helplines offering advice and information on epilepsy, its treatment and a wide range of associated issues. Also produces information booklets, factsheets and other resources. Offers assistance to people with epilepsy, their friends, families and carers, through a national network of local support groups, accredited volunteers and regular regional conferences.
Contact: New Anstey House, Gate Way Drive, Yeadon, Leeds, LS19 7XY
Tel: 0113 210 8800
Fax: 0131 391 0300
Email:
epilepsy@epilepsy.org.uk
Website:
www.epilepsy.org.uk
Helpline: 0808 800 5050
Epilepsy Research uk
Promotes and supports basic and clinical scientific research into epilepsy.
Contact: PO Box 3004, London, W4 4XT
Tel/Fax: 020 8995 4781
Email:
info@eruk.org.uk
Website:
www.epilepsyresearch.org.uk
Epilepsy Specialist Nurses Association
Provides information about Epilepsy Specialist Nurse services.
Contact: Carole Doran and Alastair Perry, Administration Corridor, Tickhill Road Hospital, Balby, Doncaster, DN4 8QL
Tel: 01302 796215/6/7
Fax: 01302 796398


